| Name of Non-Profit Organization * |
Lowe Syndrome Association
|
|---|---|
| Today’s Date: * | Monday, September 29, 2025 |
| Organization’s website | https://lowesyndrome.org/ |
| EIN / 501(C)(3)Number * |
311160328
|
| What year did your organization receive it’s non-profit status? * |
1983
|
| Address * | 
Lowe Syndrome Association 311160328Cincinnati, ohio 45255 United States |
| County * |
Hamilton
|
| Point of Contact for Magnified Giving Youth * | Jeri Kubicki |
| Point of Contact’s Title * |
President
|
| Point of Contact’s Email Address * | president@lowesyndrome.org |
| Point of Contact’s Phone Number | (202) 465-2717 |
| Executive Director’s Name * |
Jeri Kubicki
|
| What is the mission of your organization? |
To improve the lives of persons with Lowe syndrome and their families through fostering communication, providing education and supporting research so that individuals can attain their highest potential.
|
| Which social causes (up to 3 choices) does your agency address through its programming? * |
|
| Any comments about your selections you would like to share with the student philanthropists? |
This rare condition affects only boys- who are born with cataracts, kidney dysfunction and cognitive impairment. We are headquartered in Cincinnati Ohio but support the global Lowe syndrome community.
|
| Does your organization have volunteer opportunities available for students? * |
Yes, Grades 6 – 12
|
| List possible volunteer opportunities -or- a link to where they can be found on the web. | |
| 1) Local fundraising to raise awareness (see # 6 below) 2) Newsletter pieces: Short poems, reflections, art, or “words of encouragement” to spotlight youth voices. 3) Artwork for awareness: Design t-shirts, stickers, or graphics for conferences and fundraisers. 4) Digital “Wall of Encouragement”: Submit encouraging messages, drawings, or photos to post on the LSA website or social media.5) Video greetings: Record short video messages of encouragement for families worldwide. 6) School fundraisers: Host bake sales, sports-themed events. Awareness campaigns: Create posters, TikTok/Instagram reels, or short presentations to raise awareness of LS at their school. Student-led teams for Walk, Run, or Roll: Recruit peers to join or donate during the Giving Tuesday event. Coin drives or “round-up challenges”: Small, student-led initiatives that add up and raise visibility. |
|
| Volunteer coordinator | jeri kubicki |
| Volunteer coordinator’s email address | president@lowesyndrome.org |
| Volunteer coordinator’s phone number | (202) 465-2717 |
| Student Connection Preference (click all that apply): * |
|
